Patient and Caregiver Survey of Burden of Bronchiectasis in the US and Europe
The BURDEN survey, presented at the American Thoracic Society conference, provides new insights into the social and emotional impact of bronchiectasis on patients and caregivers. It highlights the need for better management of pulmonary exacerbations to improve quality of life.
Why it matters
Understanding the patient-reported burden of chronic lung diseases is essential for developing more effective, patient-centered treatment protocols.
The Bronchiectasis Understanding and Research on Daily Experiences and Needs (BURDEN) survey is the first multinational initiative assessing the impact of bronchiectasis from the perspectives of people living with the condition and their caregivers. This poster review article highlights a presentation from the American Thoracic Society (ATS) International Conference, which took place in Orlando, Florida, USA, between May 15–20, 2026, where results from the BURDEN survey were presented. Eva Polverino, Pneumology Department, Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain, presented realworld evidence of the social and emotional burden associated with bronchiectasis (BE) for both patients and their caregivers, highlighting the impact of exacerbations on disease burden and daily living. BE has an increasing prevalence worldwide and is associated with a socioeconomic burden. Findings serve to reframe BE as a condition with persistent emotional and societal impact, highlighting the importance of managing and reporting exacerbations effectively.
The content is a factual summary of medical research findings presented at a professional conference.
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