Parents were counselled about generic drug, says doctor in charge of SMA clinic at SAT Hospital
Medical officials at SAT Hospital have defended the transition to a generic version of the SMA drug Risdiplam, stating that parents were thoroughly counselled. The hospital maintains that the generic drug is a safe alternative and that the transition was vetted by a technical committee.
Why it matters
The case highlights the challenges of balancing cost-effective healthcare with patient trust and communication regarding rare disease treatments.
Parents were counselled about generic drug, says doctor in charge of SMA clinic at SAT Hospital left https://th-i.thgim.com/public/incoming/4uma6n/article71616850.ece/alternates/FREE_1200/Bengaluru-fake-GQIGJMC1H.3.jpg.jpg JK1991 Many pills and tablets on black background for decorate and design project. Thiruvananthapuram Parents of spinal muscular atrophy(SMA)-afflicted children coming to the SMA clinic at SAT Hospital had been counselled several times about the government introducing the generic version of Risdiplam, instead of the Evrysdi brand by Roche, said V.H. Shankar, Head of the Department of Medical Genetics, who is also in charge of the treatment of children with rare diseases at the hospital, here on Friday. Dr. Shankar, who attended a press conference along with Health Minister K. Muraleedharan, said several meetings had been held with the parents of SMA-afflicted children, during which time all their queries on the efficacy of the generic drug were clarified.
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