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The Hindu·3 min read·medium

Parents of SMA-affected kids in Keralam seek political support for their concerns over generic drug

T
The Hindu Bureau
Parents of SMA-affected kids in Keralam seek political support for their concerns over generic drug
✦AI Summary

Parents of children with Spinal Muscular Atrophy (SMA) in Kerala are seeking political intervention to oppose the state government's decision to switch from a patented drug to a generic version. They are concerned about the efficacy of the new medication and the potential impact on the free drug distribution scheme.

Why it matters

This highlights the tension between public health cost-cutting measures and the quality of care for patients with rare, life-threatening genetic disorders.

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Parents of SMA-affected kids in Keralam seek political support for their concerns over generic drug left Image for representational purpose only. https://th-i.thgim.com/public/incoming/t915u8/article71600142.ece/alternates/FREE_1200/IMG_BL3012_Pulse_Anchor_2_1_R9DPCMH4.jpg Oksana Horiun Spinal Muscular atrophy ribbon. Vector cartoon illustration of hands with a heart shape holding a ribbon. Opposition leader Pinarayi Vijayan has written to Health Minister K. Muraleedharan urging him to address the concerns related to the efficacy of the new medicine Kozhikode Parents of children suffering from Spinal Muscular Atrophy (SMA), a serious genetic disorder, in Keralam are trying to get political support for their opposition to the State government’s decision to replace the life-saving medication being administered to their kids with a generic drug. A section of them recently met Opposition leader Pinarayi Vijayan and Industries Minister P.K. Kunhalikutty. Mr. Vijayan also wrote to Health Minister K. Muraleedharan, urging him to address the concerns related to the efficacy of the new medicine. Mr.

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