Move to make MND a notifiable condition in bid for cure
New South Wales has designated motor neurone disease (MND) as a notifiable condition to improve data collection and research efforts. Advocacy groups are now pushing for a nationally consistent approach to tracking the disease across all Australian states.
Why it matters
Standardizing health data for rare diseases is critical for accelerating medical research and improving patient care outcomes.
Awareness of motor neurone disease has grown considerably off the work of Neale Daniher. Photo: Joel Carrett/AAP PHOTOS Australia's peak motor neurone disease advocacy body has welcomed a state's move to make the disorder a notifiable condition, calling for an expansion of the nation-first initiative.
All articles from our website & app The digital version of Today's Paper Crosswords, Sudoku and Trivia All other regional websites in your area Continue The law change in NSW will enforce the collection and reporting of key data from those with the disease to assist researchers working on MND preventions, treatments and cures.
Cases of the debilitating disease, which affects eight in every 100,000 Australians, will be fed into a central system from Tuesday.
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