Jesy Nelson calls plan to test newborns for deadly muscle condition a 'victory'
England is launching a study to test all newborns for spinal muscular atrophy (SMA), a move celebrated by campaigner and former singer Jesy Nelson. Early detection is considered vital because gene therapies can prevent severe symptoms if administered before damage occurs.
Why it matters
This policy change represents a significant advancement in neonatal screening and the application of gene therapy for rare genetic conditions.
Image source, PA Image caption, Former Little Mix singer Jesy Nelson was told her twin daughters may "never walk"
The article presents a medical development and the perspective of a public figure involved in advocacy.
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