Children and young people broadly support health data research-but want safeguards

A University of Cambridge study reveals that children and young people generally support the use of their health data for research. However, they emphasize the need for transparency, ethical safeguards, and protection against commercial exploitation.
Why it matters
As big data becomes central to medical research, understanding public trust is essential for the ethical development of health technologies.
edited by Gaby Clark , reviewed by Robert Egan
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Add to Preferred Sources Credit: Gustavo Fring from Pexels Children and young people broadly support the use of health data for research that could improve lives, but they want strong safeguards, transparency and greater involvement in decisions about how their information is used, a review led by researchers at the University of Cambridge has found.
The team reviewed the existing evidence, bringing together studies that capture the views of more than 4,700 children and young people and almost 1,500 parents and caregivers on the use of large health datasets—'big data'—in children's health care research.
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