At 6, Dylan Siegel wrote a book for a friend; it raised $1m for research
At age six, Dylan Siegel wrote a book titled 'Chocolate Bar' to raise money for research into his friend's rare genetic liver disorder. The project successfully raised $1 million for glycogen storage disease research.
Why it matters
This story highlights the impact of grassroots philanthropy and childhood initiative in medical research funding.
At the age of 6, Los Angeles boy Dylan Siegel decided he wanted to help his best friend, Jonah Pournazarian, who had a rare genetic disorder affecting his liver. When his mother suggested that he could raise money through a lemonade stand, Dylan had another idea. He wanted to write a book.The result was a 14-page illustrated booklet called Chocolate Bar. According to Jewish Journal, Dylan used the phrase “Chocolate Bar” to describe things he thought were great, including trips to Disneyland, the swimming pool, the aquarium and the bowling alley. He ended the book with a line about helping his friends.Dylan did not stop with writing the book. He worked with his parents to produce copies and started selling them to raise money for research into glycogen storage disease type 1B, the disorder affecting Jonah.
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