Association of People with Disability calls for National Spinal Cord Injury Social Registry
The Association of People with Disability (APD) is advocating for a National Spinal Cord Injury Social Registry to gather better data on people with spinal cord injuries (PwSCIs) and improve long-term support systems beyond clinical care. This initiative aims to enhance coordination across healthcare, rehabilitation, social protection, and livelihoods, building on APD's 25 years of supporting over 7,000 PwSCIs.
Why it matters
A national registry would provide crucial data to understand the needs of PwSCIs, leading to more responsive and sustainable rehabilitation and support systems, ultimately improving their dignity and independence.
The leadership team of the Spinal Cord Injury Rehabilitation (SCIR) Programme of the Association of People with Disability (APD) called for support to evolve a National Spinal Cord Injury Social Registry that seeks to address the need for stronger data on this population and the realities they face beyond clinical care.
“We believe there is a need for better data and stronger coordination across healthcare, rehabilitation, social protection and livelihoods — and a National Spinal Cord Injury Social Registry can be an important step towards understanding this population better and building more responsive systems of long-term support,” APD CEO Sukanto Aich said.
The Spinal Cord Injury Awareness Month is being observed in September. APD has supported more than 7,000 People with Spinal Cord Injuries (PwSCIs) over the past 25 years.
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